We've been lucky for mostly ups in this NICU journey. Andrew continues to do pretty well - although he's had a few bumps. Just when we begin to feel somewhat comfortable and happy about his progress he throws one at us. He had another fairly large spell on Sunday night (needed to be bagged). They can't put a finger on why they are happening, the good news is that there is no signs of infection, his b/w and lungs look good, and he seems fine afterwards. The bad news is that they are still happening. At least they have been less frequent (only one this week). DOWN.
He's also not been gaining weight at the pace the doctors would like (approx 30 gms/day). In fact, he's lost weight the past few days, and quite a bit last night (100 gms). I feel like we just lost a week in weight gain. :-( Like the spells, they don't know why (no signs of infection or stomach issues, except he has been constipated.) When we know that nutrition and weight gain are really his pathway home, these setbacks are so disheartening. They want to move him to an open crib, but are hesitant because of his weight. He's keeping his temp regulated with swaddling, but they want him to be about 4 pounds before making the switch. DOWN.
Finally, Andrew had his eye exam yesterday. While he did well during the actual exam, his ROP issue may be worsening a bit. He is still at level 2, but the nurse mentioned that the opthamologist said it looks like it may be progressing. We are supposed to talk to them tomorrow, and he will have a follow up again next week. We are hoping he doesn't need the laser surgery. DOWN.
All this just leads to a big BLAH for mom and dad. We know things could be worse. We hope it doesn't get worse. We hope a big UP is just around the corner.
[The good news is that he's been a cute, cuddly baby the past few days and seems to love his snuggles with mom and dad. Enjoy the pics, and pray for UP!]
|Snug as a Bug|
(Mom's been calling him Bug-a-boo lately!)
|Much better! So comfy!|