|Slow down, please!|
Another frustration of the new room is that he has a bunch of new doctors, who don't really know him or his background. He's had new and different nurses each day who also don't know him yet. So even though J and I are there as much as we can, he's not getting a lot of continuity of care. I tried to meet with his doctor yesterday, who apparently left for the day early, so we're also not getting a lot of communication directly from the doc who writes the orders. Hopefully today I can meet with him and get some answers.
Anyway, for now things have just stalled a bit. They have stopped bottle feeding him, and he's back to getting his food through the tube over 2 hours. What doesn't help is that since he is now used to getting fed every 3 hours by mouth, the boy is hungry at feeding time! And, since he's getting the feed so slowly, he's a bit cranky (and shows it) each time it gets close. They've also moved his flow back up to .1, and when he's not having spells he's satting just great. The good news, is that his respiration rate has gone back down with all these changes, so he definitely needed a break. We'll see what today brings, and if we can get this boy moving forward again.
PS - he's been sleeping a lot the past few days, and is just so dang cute with his different poses! He sure likes those hands up by his face. Enjoy the pictures, and keep the good thoughts coming his way!